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Friday, October 26, 2012

OH, Buy the way

ok just  short quick note.
The setup of this blog is ich that, you see the last message i typed first??? wird huh
Anyway of you want to read things in order you have to scroll all the way down th epage to the obtoom and then work your way up...
Welcome to my world :)
my day goes pretty much about the same way..
love you all
God bless you all!

The best I can

That picture is even more true this wee.
It felt more like a month than a week.
I started the week with a tickle in my throat and ended up feeling like i have the plague...
I have a new care giver/helper.
I think God sent her to me... I have known her for years, but did not really know her.
She knows computers and Alzheimer's , so there ya go, perfect for the job of my caregiver and helper at work. She has over 8 years as a caregiver for and AD couple and she stayed with them to the end..
I know I am going to have to stop working, probably sooner than I even want to think of.
However, having her with me makes my have renewed joy and hope.
I realize however, Had i not had her with me this past week, i might have ended up in the hospital, or worse.
It culminated yesterday afternoon on the way back from a short trip to San Angelo.
The contract was not a difficult one, either mentally or physically to speak of., I did have to make depressions and solve a few issues to make the best of the contract and satisfy both the buyer of the product, and the manufacturer of it that was paying me to get it all installed, set up and working.
The end user decided he liked it so much he wanted to start using it.... NOW.. usually, they are  told to train on it for a week before their second stage, advanced training they are given 7 days after we install it and set it up.... But he liked it so much he wanted to use it NOW... That meant, in two hours, when they normally opened, we had to train him, get all the changes made to the software to make up for any miscommunications that occurs normally from the time the person orders the equipment from the sales man till that day we actually deliver it.
Small things like the managers private cell number on all the receipts given out to every customer to daily specials overlapping causing higher than desired discounts, making the customers happy, but not the owner... and they are OUR clients.
I was fortunate that Crystal can be left alone to finish a task without being constantly supervised like so many other assistants I have had over the past 40 years. Watching them like a hawk makes the job just take that much longer...
I spent one day this week without her since it was only in Abilene and Sweetwater, and i never finished the day.
I was completely exhausted by the second of three sites I could not continue and had ran out of day...
I had to reschedule for next month as i was spent...
This week wore me out so bad I could not work today.
It took everything i had to make it to town to have lunch with my wonderful Wife and Friend and Partner and caregiver Koren...
I thank God for having sent her to me and my cranky cousin Jeanette for introducing us.
My cousin and her husband are having difficulties with my disease especially since i have progressed so quickly this past year. I can;t seem to do the simplest thing these day's...
I went for 7 years without seeing all that many changes and then this past year i have been hit by a train almost...
I think stopping my medicine and then changes in life circumstances has sped things along...
My entering and remaining in denial for three years did not help..

This week my symptoms are getting worse.
 ( walking is truly a challenge this week) (more on that in another post)
Now i am having a more difficult time spelling..  I seem to want to spell in British English instead of American English??? I only actually lived there for three years, however, I have been traveling there for many years (* since 1975) And flew into there quite often while living in Germany for 5 years...
I remember one year my 2nd wife and i went over after gulf war 1 for a week for R&R .
WE stayed at Saint James   court in west minster just a few blocks from The royal palace...
I remember getting the awful headache while driving north to take her to see my old home in Bletchington.
I could not imagine why my head hurt until the return drive to London...
Apparently i was translating the British road signs into German and the into English while driving at 70 plus miles an hour and it was making my head hurt... LOL so i decided to stop doing that for the remainder of the week and my head felt fine. however, i just hope i didn't memorize all those words and now will always spell them in Her Majesty's English instead of good old American English lol
Typing is ridiculous now as well. i have to stop about every 10 seconds and beg mister spell and grammar check to please decipher what i just chicken scratched.. i miss most of the word now and then and scramble the order as well.
The last typing test I took was a few years ago and it was 160 words a minute at 98 percent accuracy.
Last week i did one.. I am embarrassed to say.... my worst attempt was late in the day and was 11 words a minute at 50 percent, my best was 80 words a minute at 60 percent accuracy... That was around 10 am after four cups of coffee and some chocolate cupcakes (several)  lol

So, if i wait until late to type this blog, I'm pretty much screwed.
This one today I started at 2,,,
I think I'm going to start calling this decease, but first decease, lol...
Karen gave me the idea today. She said i always have good intentions of getting things done, but first......

OK my brain is shrinking i can feel it, so off for more coffee and chocolate so i can prepare for her to come home, my 4 alarms are going off to tell me I'm supposed to be doing something....
Now, if i could just remember what it is lol...
Love you all!!!!
Please be patient with me, I am doing the  best I can...

Some information to help YOU understand!


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alzheimer's e news
October 24, 2012   
Alzheimer's Association
As one of the plaintiffs in the federal class action lawsuit Jimmo v. Sebelius, which challenged the Medicare Improvement Standard, the Alzheimer's Association applauds the recently announced proposed settlement. Under the settlement agreement, Medicare will pay for rehabilitative services, such as physical, speech and occupational therapy, if they maintain an individual's current condition or prevent or slow further deterioration and require the skills of a professional. Rehabilitative services are beneficial to helping people with Alzheimer's maintain their current function.
Read the Alzheimer's Association statement >>
Award-winning producer and director James Keach is making a documentary about singer-songwriter Glen Campbell's battle with Alzheimer's disease. But it isn't solely Keach's experience with Campbell that has inspired a commitment to the fight against Alzheimer's — Keach and his wife, Jane Seymour, also have a personal connection to the disease.
Read the article >>
The Alzheimer's Association New York Rita Hayworth Gala was held last night, and we're excited to announce our first online auction with charitybuzz, the leading destination for incredible online charity auctions. Bid through Nov. 8 to win one of the many items and experiences to benefit the New York Rita Hayworth Gala.
Bid today >>
Caregiver resource links

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Exercise your brain and test
your skills.
Solve today's puzzle >>

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The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Alzheimer's Association National Office 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601
© 2012 Alzheimer's Association. All rights reserved. | 800.272.3900

Monday, October 22, 2012

Free Reports!

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Professor of Psychiatry,
Johns Hopkins University School of Medicine

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IM still alive, well sort of..

Yes I am alive.
It would appear that i pushed myself too hard last week. I paid for it all weekend and this morning.
i also got my flu shot Friday and of course it made me sick all weekend...
I have not had the wherewithal to even begin to type utill today/
I had an awesome visit from my friend trey this weekend and it raised my spirits.
My best friends Family suffered the loss of a loved one last week, and i was not healthy enough to make the trip to show my respects, this plunged me into depression.
We have been friends for fourty years now and they are more like my family then friends...
The good new is I had a new care giver that was also helping me with work.
She has 8 years experience with AD and was instrumental in my getting work done last week...
It is getting VERY difficult for me to do some jobs, I don't know how much longer I can keep this up?
I get people calling me all day all week long because they can't find anyone dedicated like I am or determined. It would appear that other techs and field engineers in this area only want to do the minimum and then just split????
What ever happened to integrity and self pride?
I like the work most of the time.
some days i just want to go back to bed.. OK most days  LOL
The pain is worse over the last week.
I had no tramidol for about 4 days and can't seem to get caught up on anything
I managed to finally make a support group meeting, but only the second half..
I must admit seeing others further down the rabbit whole depresses me..
First because i care about them and second because it  makes me self actualize my future..
I hate to say my mom hot spared most of this because cancer took her before she got past stage 5...
But somehow it seems God gave her a break.
She was fine on Friday, went to er on Sunday and died on Wednesday Christmas eve....
I dislike the holidays even more now.
Originally because of the commercialism of it all, each year we plunge ourselves deeper and deeper in debt because we have to buy love from our friends and family via gifting,.
If Johnie next door gets a better present then his family MUST love hm more
Bull pucky....
We have forgotten what it is all really about... So it depresses me more...
My wonderful wife has been awesome about taking care of me and putting up with me..,
My new caregiver assistant Crystal is also taking good care of me.
I hope some check's come in and clear soon so i can pay everyone..
I am going to have to take them someplace to cash them now that my bank holds all checks going into my businesses accounts for up to 10 days.....
ACH deposits seem to be taking a lot longer now s well.They used to only take 2 days, now they can take up to five.My ability to sit this long and type is also diminishing,..
It wears me out mentally and physically. especially with all my spelling and programmer errors.
Thank God for spell check LOL...
I am getting tired, so il stop for today.
If you love someone, tell them NOW they or you may not be here tomorow...
And then you will spend the rest of your life wishing you had..

God bless you all

Monday, October 8, 2012

Just another MANIC monday

Morning everyone,
I am still alive.
It has been a long weekend...
We did the heart walk on Saturday, we only managed half of it.
Karen's hip and my heart could not do the second half...
I was limping the whole time with my new muscle cramps and pain in my legs.
I am out of my Tramidol, apparently I lost a bottle someplace, so i cant get a refill until the 14th?
i have not had any for ell over  week so i am in bad shape.
Add to that whatever bug i seemed to have picked up and the new muscles not working and my depression seems to be out of control.
I cry at the drop of  hat now?
I seem to let everything upset me no mater how small or insignificant...
my right arm stays swollen, sometimes i have to take off all the bracelets from all the walks and functions we have been on because they cut off my circulation and feeling in my right hand.
I started gaming again on my Xbox 360.
Bought a larger hard rive for it and it took me all day to transfer files from the old one, used to only take about an hour...
I had some young punk on there giving me grief trying to tell me wat to do and I lost it.
What is wrong with these young punks today thinking they can say whatever they want to us older people?
Calling me childish names and trying to order me around like he knows me and thinks he has some right???
I was in the military 25 years, one thing they learned, Frank does NOT take orders , he gives them...
Even our wing commander made suggestions to me knowing full well i would do anything he asked...
I am concerned about all these grown people living off us old people.
What the hell are they going to do when we die?
WE pay the bills buy and cook the food etc...
When we died, our homes are going to be lost to someone because our children are lazy , co dependent, and immature..
Nothing is EVER their fault and no one understands them...??
I expect that from a 13 year old; not 30-40 year old's and even one 50 year old that tried to subcontract for me for a short time.

Our children are in a sad state, who will take care of them when they get old?? no one.. apathy will have taken over ad old people will freeze to death starve to death and die of loneliness, and it will be them, our children that will be old. Their children are even lazier and have more excuse than our children have..
NO respect, no honor, no integrity... And violence and sex on TV is normal now.
When we where kids you could not even say shit hell or damn on TV at any time or you faced jail time and hefty fines..
Now they say just about anything and do just about anything and just put an advisory up...
90 percent of the children in this country dont have anyone watching what they watch to monitor it.
Th are now provisions on satellite to regulate what they watch on each TV, but few parents lock their own TVs so kids will do what kids do; find a way...
I feel sorry for them all..  t
their future is truly bleak..
OK enough soupboxing lol..
I have to try to see if i can figure out  who I owe money to and if I can figure out the best way to get it to them...
God bless you all...

Thursday, October 4, 2012

news letter

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alzheimer's e news
October 3, 2012   
Alzheimer's Association
Sara Allen Abbott and her sister, Kate Allen Stukenberg, are brunettes born and bred in Texas. Their love of football is geographically influenced but also a family affair. In 2005, Sara and Kate's dad was diagnosed with younger-onset Alzheimer's disease at 63. Sara approached the Alzheimer's Association with the idea of tackling Alzheimer's on the football field with all female players. A winning event, Blondes vs. Brunettes®, was born.
Read the blog post >>
Learn more about Blondes vs. Brunettes >>
A person with Alzheimer's will eventually become unable to drive. Losing the independence driving provides can be upsetting, but it's important to acknowledge a person's feelings and preserve his or her independence, while ensuring their safety and the safety of others.
Visit our Dementia and Driving Resource Center >>
Art is a powerful sensory experience; looking at a piece of work and thinking through it can sharpen concentration, bring back memories and stirs emotions. Some people with Alzheimer's can focus and remember more while discussing works of art.
Read the article >>
Learn more about art therapy >>
Caregiver resource links

Stop by our brain gym
Exercise your brain and test
your skills.
Solve today's puzzle >>

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Alzheimer's Association National Office 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601
© 2012 Alzheimer's Association. All rights reserved. |  800.272.3900 
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